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Friday, June 10, 2011

48-hours and waiting

It has been 48 hours and still Kip Woodward's email address is not on the VCH web page site.

I just checked Providence Health and find that Geoff Platt is the Chair.
Being a lawyer and an attorney-general for BC for nine years he must know of the 5Ds. Kip was the Chair of Providence Health for four years. Both of these chairs are therefore acquiescing that senior staff manage in such a fashion.

And I was the only public at the open board meeting of VCH on June 8 2011... Senior management is doing their jobs: D3 divide public from management by D5 demoralize the public so they know that whatever they do is futile. I hope each senior management employee gets a big bonus because his performance has been stellar.

I am closer to 70 in age than 60 and those of us who are closer in age to 80 than 70 and those of us who are closer in age to 90 than 80 and those of us who are closer in age to 100 than 90 have the time and the $resources to rapidly change how our medical services are delivered.

Martin Luther King Jr. said: Our lives begin to end when we remain silent about things that matter. And health care matters.
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Thursday, June 9, 2011

VCHA Open Board Meeting June 8 2010

Yesterday I went to the Vancouver Coastal Health Board Meeting. It was one of three open board meetings which are open to the public each year. I think it should have monthly open board meetings as there is so much material and if the board meetings happen more often (same date and time and place each month) more people will come. These board meetings should be set up so that they are educational vehicles for the public to learn, to understand, to participate. And the presenters and the Board members and staff should stand not sit when they talk. Sitting hiding behind microphones so no one except the first row can see you is not what I expected. I would like to see who is talking and they all should have name tags. Whispering to someone (security) next to you "who is speaking" is unsettling. I remember getting up in the Q&A period and starting with ... I am closer in age to 70 than 60 but I still can have a voice (or something like that).

I was able to secure a promise from Kip Woodward, the Chairman of the Board, that on the VCHA web page www.vch.ca on the Board Members' page that all the directors' email addresses will be posted bypassing the long hierarchical command of the CEO. He agreed. One victory but then we will have to see how long it takes for it to happen. Napoleon Ostrow (Ostrow looks like Napoleon -- short and stocky)is really in charge as he is the CEO and it will be interesting to see how long since Kip decided this at the Board meeting that this will in deed happen. It is now 30 hours and still no directors' email addresses on the web. D1 is in progress: delay, delay, delay.

Did I mention that I was the only public at the Open Board Meeting although the audience was full of presenters (senior management). Speaking to the converted. It must mean that 1 million people in the Greater Vancouver area is happy with the Health Authority. Happy, happy, happy. This is what I was told by the nursing staff at George Pearson Centre as Randy repeatedly pulls out his trach. I am banned from seeing Randy at his bedside so I do not know how many times he has pulled out his trach or why. But the nurses assured me that when they leave Randy with me for our visits they do not worry about Randy as Randy never pulls out his trach when I visit. One of the nurses also told me that with three visits a week that at least now Randy gets out of his bed three times a week. Does that mean he is confined to his bed when I am not visiting. I asked for a video survilliance but I was told that it was impossible. Why is that in New York State the public interest is paramount to the private interest of employees in nursing homes and cameras are being installed. If I am not allowed to see Randy at his bedside I should at least be able to view him on a webcam.
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Tuesday, June 7, 2011

Anniversary

Today, June 7, 2011, is the one year anniversary of Randy's injury. A year to reflect upon with regret.
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Saturday, May 28, 2011

A Caring Friend

I just came across this video. Please view it. It is on You Tube.
BC's Health Authorities on How to Effectively Communicate with the Public

There are five Ds to effective communication: D1 delay; D2 deny; D3 divide (separate patient from family); D4 discredit; D5 demoralize.

This is after I was told by Dr. Moria Stillwell, MLA for Langara Vancouver, this morning at her compliant meet and greet at the Oakridge Senior Centre, that the Health Authorities are their own governments removed from the jurisdiction of the BC government. I suspect the culprits are the slippery non-profit societies which are taking over everything. We don't have centralized government answerable to the public any more we just have societies (decentralized governments)that can do what they want when they want because they can.

Since the Health Authorities are beyond the reach of the legislature, I hope that those of you who read this and have a video camera will record the You Tube video (i.e. take a video of the video) before the Health Authorities force Paul to take it off the internet.

The couple who promised the flat screen TV never delivered it. So I had to buy Randy a new one. Although it was greatly reduced from its original price, it took a big bite out of my pension monies. I am down to $55.00 for the month and I still have to pay my hydro.
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Saturday, May 21, 2011

A Caring Friend

I went to see Randy yesterday. It was a beautiful day. (Rain is now forecasted for the next two weeks.) I asked if I could take Randy out into the patio area (the garden area where we were on Tuesday). I was told no by Tanu. I do not understand what is going on. Randy has me, he has a security guard, and the patio area is isolated so I can't talk/terrorize anyone there. So we had to sit in a hot hot hot room for three hours. The BC Government is paying George Pearson Centre $12,000 a month for his care and comfort. I am not a doctor so I do not know about the care but I know the comfort is being denied him. He doesn't have a fan at his bed which I was told GPC is suppose to provide or a television so he can at least watch television during the long weekends and evenings when staffing levels are low and he has no visitors (not even me who lives nearby as I have been banned durng these times) no activities, no nothing.

The television is going to be a bone of contention with me for a very very long time as no staff told me that Randy had no television. I was told by a casual acquaintance like "did you know Randy didn't have a tv any more." A television under the Health Act is not considered part of care unless you are a drug addict at St Pauls (no other hospital in BC has free tv for patients) then you have your own personal paid for television.

Someone like Randy who has a brain injury has no stimulation. He only has hours and hours of nothing so he can scheme on how and when to pull out his trach. On Saturday I was on the street asking for donations for Randy. A couple stopped and said they had a flat screen tv which they never use. A flat screen is necessary so that it isn't as heavy as the old loaner tv Randy had that fell down injuring a nurse on its way to the floor because of its weight. The screens are bolted to the ceilings. I gave them the address of GPC. I hope they deliver the tv to GPC and also visit Randy.

Yesterday Randy had a new Olympic t-shirt on, (I found a place that sells the surplus Olympic tees 3 for $10.00 but I could only afford one which I bought him the day before), a baseball cap, pj bottoms. He had no shoes on, no sherpa lined slippers, no socks. Although it was very hot and his hands and body were warm his feet were very cold and very blue. I have been taking an extra pair of socks each time I go so I can put socks on him and massage his feet until they warm up. He spent time trying to write his name on a white board and navigating his wheel chair. It was very hot so both of us didn't feel like doing much. We rested in the heat.

The doggies were tied up on long leashes in the shade on the patio area and hardly moved for the three hours because of the heat.

What is GPC doing. Are they being cruel just because they can. There is no other noun to use except cruel and I dare GPC to explain otherwise.

If there are vulnerable residents in GPC (there are no old people there)that are afraid of me then I would like to know who they are and who decides they are vulnerable and more importantly who told them to be afraid of me. I am an old lady that takes in rescued dogs. I am not going to hurt anyone. The harshest thing I have every done to the doggies is say QUIET in a stern voice. At best I would rescue a few GPC residents that were unhappy by talking to them and inviting them to become friendly with Randy's doggies. At least then they would have something like a family to look forward to when I visit Randy. The big dog is called Missey and the little dog is called Owen. Both doggies are very friendly and affectionate. But that is never going to happen because of Charge Nurse Tanu's rule: I am not to talk to anyone unless they talk to me first. And some of the residents can't even talk...

Again GPC is not a hospital it is a residential care facility i.e. homes where residents live as free Canadian citizens. These residents have their own voices; GPC should not be speaking for them. None of them are immediately palliative.

What made my day on Friday was a sign posted by GPC in the piano room boldly stating that any furniture is not to be moved and on the bottom of the post printed in ink were the words
This is your home so move the furniture if you want

finally, the start of a revolution by the residents within George Pearson Centre. The piano room is a common room so if a resident wants to move furniture around let them. And if the next resident wants to do so let them. I remember my mom would be constantly rearranging furniture. It made life a bit more interesting and it is free.
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Tuesday, May 17, 2011

A Caring Friend

There has been much confusion as to my connection to Randy. So I decided what I am is a caring friend, nothing more complicated. A caring friend could be a relative or a spouse but not necessarily.

Randy was in good form today but his feet were cold so I took off my socks and put them on him. When I was allowed to do his laundry I always made sure Randy had adequate socks and t-shirts and pj bottoms. I also worry about his plants and flowers I send him on the days I am not allowed to see him. The plants need to be water sprayed and the flowers have to have its water changed daily. And now he doesn't have a television as it fell down from its ceiling brackets unto the floor last week. It was an old television that did not have a remote that was left by another resident who had no further use for it as he was dead. Randy had to rely on me or staff (?) to make sure he had it on and a channel he wanted to watch. I will look for a small flat screen tv with a remote over the weekend and hopefully the tech people can have it installed soon. Nothing gets done quickly at GPC; it will probably take a month before Randy has a television again. I worry about Randy if he doesn't have any distractions the isolation will cause him to lash out. The nurses will have to restrain him which will just anger him more. Randy can read but he can't hold a newspaper or use his fingers to flip papers. So he can't even read a book; he is just wasted.
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Monday, May 16, 2011

Etc.

Like everyday there is something to do but nothing seems to be accomplished.

I am hoping this week to renew my interest in the proposed new BC Society Act which is suppose to come into effect 2012. It is an Act that has already been lobbied and written by the law profession. From my reading of it it makes Societies more secretive than they are now. The BC Government wants noting to do with the governance of a society except to register it. The number of directors can be only one. So who will be watching the store. If you look at the governance of Broadmead Care Society in Saanich you can speculate how badly it is managed. Any non-profit that has 400 employees (250 parttime) and only 10 employees who earn more than $40,000 a year has to be red flagged. I wonder who earns the $150,000 salary.

Also I blame the directors of Broadmead Care Society as each and everyone of them should have interviewed Kathleen three years ago and even the day before her death and maybe this injustice would not have happened to Kathleen to determine to their satisfaction if Kathleen was of sound mind. It is only commonsense that spells out that a home setting is better than an institution. The law is based on what a "reasonable man" would assume. They could have used moral suasion if they felt the sons were being unreasonable and even if the doctor and staff at Broadmead just made a bad assessment because of money and time constraints. Being a director does not mean that you hide and just wait to be reelected to your prestigeous position in the community. Each one of them should be ashamed of their behavior. They have a fiduciary duty not only to Kathleen, the Care Society, but also to the public. And to make it worse Broadmead primarily is a veterans residential care facility.

Although I haven't heard anything further re Lois Samspon about her mother and nothing has been advertised as to when her mother's funeral or memorial service will happen, it is wrong that the next-of-kin can decide whatever he wants to do with Kathleen's body. After death a tribute is only respectful and necessary. Whatever Ralphie is doing is morally wrong.

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