I still do not understand the rush for getting a DNR from Randy. He is already on heavy life support so why would he now want a DNR. Randy does not want a DNR but VCH is intend on getting one like they are under a quota before the end of the year. I believed that Randy could change his mind but GPC said no he can't, So once Randy agreed to a DNR he can't change his mind. Don't sound right but VCH seems to do a lot of things that do not sound right.
The decision to place a DNR order on a person’s medical chart belongs to
the physician. This decision may be made without anyone’s knowledge or
consent. People with developmental disabilities are extremely vulnerable
to DNR orders if they have no one in their lives to advocate for them.
Consequently, people with developmental disabilities are sometimes not
given life saving interventions when they might otherwise be given the
intervention if the disability were not present.
(contact BCACL 604.777.9100)
Saturday, December 8, 2012
Sunday, December 2, 2012
Things are a bit better....
Things are getting a bit better for me with Randy now that I am allowed to enter Ward 2 and stay with Randy for one-half hour sometimes it is extended to one hour. If he doesn't feel up to getting up I make sure he is comfortable, we chat a bit, and I make sure his television is on.
I do not have to take my valium any more as I access George Pearson Centre in anticipation of the stress of waiting and waiting and waiting for staff to bring Randy to the visitor's room. I was so intiminated that I could not speak to anyone for the fear that I would then be subject to a report that I was combative and agressive.
Now still under security of course I can go down to his open ward bed and if he wants to go to my place or to Oakridge for a few hours, I help him get dressed and we are off. I recently purchased him a $80,.00 rain cape that engulfs him while he is in his wheel chair outside. He also wears a Steelers hat. I purchased him a Steelers jacket for his birthday on December 10 2012 which I know will make him happy. He is a devote Steelers fan.
The same is when I return. I call 4777 Paladin Security on my arrival. They immediatley escort me down to his bed and watch me and I spend a few minutes sometimes a 1/2 hour to make sure Randy is comfortable. There is no problem; no residents are shrieking that they are afraid of me. I am not even noticed by the other residents.
Randy of course is more relaxed as he knows that I am looking after him at his bedside. Finally I am somewhat comfortable with this arrangement but of course I would prefer 24/7 access to him like other family members have to their loved ones.
I am hoping to access the ethics committee for a ruling to say a two year ban based on staff and visitors who have nothing else to do but target a 70 year old lady and bully her until she had a verbal outburst with staff over giving a stuff toy to a resident is unreasonable. The LPN grabbed it out of my hand and he told me the resident did not need it. And after two years the LPN is till working there making decisions for residents. The Santa Clause stuffed toy remained for months in the nurses station.
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I do not have to take my valium any more as I access George Pearson Centre in anticipation of the stress of waiting and waiting and waiting for staff to bring Randy to the visitor's room. I was so intiminated that I could not speak to anyone for the fear that I would then be subject to a report that I was combative and agressive.
Now still under security of course I can go down to his open ward bed and if he wants to go to my place or to Oakridge for a few hours, I help him get dressed and we are off. I recently purchased him a $80,.00 rain cape that engulfs him while he is in his wheel chair outside. He also wears a Steelers hat. I purchased him a Steelers jacket for his birthday on December 10 2012 which I know will make him happy. He is a devote Steelers fan.
The same is when I return. I call 4777 Paladin Security on my arrival. They immediatley escort me down to his bed and watch me and I spend a few minutes sometimes a 1/2 hour to make sure Randy is comfortable. There is no problem; no residents are shrieking that they are afraid of me. I am not even noticed by the other residents.
Randy of course is more relaxed as he knows that I am looking after him at his bedside. Finally I am somewhat comfortable with this arrangement but of course I would prefer 24/7 access to him like other family members have to their loved ones.
I am hoping to access the ethics committee for a ruling to say a two year ban based on staff and visitors who have nothing else to do but target a 70 year old lady and bully her until she had a verbal outburst with staff over giving a stuff toy to a resident is unreasonable. The LPN grabbed it out of my hand and he told me the resident did not need it. And after two years the LPN is till working there making decisions for residents. The Santa Clause stuffed toy remained for months in the nurses station.
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Thursday, November 29, 2012
DNRs
Recently on one of the newsmagazines on tv there was a segment about a DNR Order for a older gentleman to which his daughter, a nurse, wasn't aware. She was with her father when he was in distress and was prevented from assisting him by staff of Sunnybrook Hospital in Toronto. The staff just stood there watching the gentleman die while physically holding back the daughter because of these three letters: DNR.. How terrorizing that I still have recall of this..
I recently had a scenario of how DNRs are obtained. I am still reeling over it. If staff suspects that a family member will oppose a DNR hospital staff will just go behind the family member's back and get it anyways. It isn't even in writing. Just a notation on a patient's chart: DNR. There is a trio of doctors at VGH whose mandate is to convince patients to agree or even if a patient doesn't know what he is agreeing to but agrees that he understands it is on his chart forever never to be questioned again.
Randy had a severe traumatic brain injury and as time goes on he is susceptible to suggestions i.e. undue influence. However, one thing that Randy is consistent is when you ask him about Dr. Dunn his assigned doctor because you can't have a family doctor when you are in care is his consistent "the finger."
Why is this an ongoing issue (rush) not only at VGH but also at GPC.
Randy is only 54 years old; unfortunately he is a quad but his quality of life is good, he has no diseases nor is he in pain. The traumatic brain injury left him with a spinal cord injury. He suffers from depression but who won't.
Randy is in a system that has a halo of goodness around it. It promises to do no harm.
At the last open board meeting Kip Woodward said something had to be done to prevent extraction of DNRs while patients are in Emergency but he hasn't done anything so far.
119283
,
I recently had a scenario of how DNRs are obtained. I am still reeling over it. If staff suspects that a family member will oppose a DNR hospital staff will just go behind the family member's back and get it anyways. It isn't even in writing. Just a notation on a patient's chart: DNR. There is a trio of doctors at VGH whose mandate is to convince patients to agree or even if a patient doesn't know what he is agreeing to but agrees that he understands it is on his chart forever never to be questioned again.
Randy had a severe traumatic brain injury and as time goes on he is susceptible to suggestions i.e. undue influence. However, one thing that Randy is consistent is when you ask him about Dr. Dunn his assigned doctor because you can't have a family doctor when you are in care is his consistent "the finger."
Why is this an ongoing issue (rush) not only at VGH but also at GPC.
Randy is only 54 years old; unfortunately he is a quad but his quality of life is good, he has no diseases nor is he in pain. The traumatic brain injury left him with a spinal cord injury. He suffers from depression but who won't.
Randy is in a system that has a halo of goodness around it. It promises to do no harm.
At the last open board meeting Kip Woodward said something had to be done to prevent extraction of DNRs while patients are in Emergency but he hasn't done anything so far.
119283
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Monday, November 19, 2012
Dr. Patricia Daly
What a joke her office is. Two Thursdays ago I went to see her at 601 Broadway to discuss a communicable disease and was told that she does not talk to those off the street. So who does she talk to. I go all that way the least she could have done is talk to me. She is as bad as Moira Stilwell the MLA who locks her offices so no one can drop by.So what happens if you do not have a phone or an email address. Coincidence both of them are doctors, working and living in cocoons in gated communities.
I wrote a note addressed to Patricia but her assistant would not take it so I tossed it unto one of the low tables at the entrance to her offices. Patricia never got back to me going on two weeks so it is time to report my concern..
Dr. Patricia Daly is the Chief Medical Health Officer and Vice President of Public Health.. Someone who is paid to look after our public health.
With flu season upon us and all the media surrounding the rights of hospital employees to have a flu shot or not, I wanted to tell Dr. Daly that it isn't the employees she should be worried about, rather it is the public that has access to hospital faciliities as visitors, vendors, volunteers, etc. I wanted her to use her position to put masks at all hospital entrance ways and make it a requirement for everyone to wear one. She may not be able to force union employees to wear a mask but because of her unfettered power she can force everyone else to wear one.
And I also went to Emerg at VGH and told one of the doctors there who said I was being agressive and he called for security. The only thing employees of VCH can do effectively is phone security. Can't deal with something simple, phone security.
,
.
I wrote a note addressed to Patricia but her assistant would not take it so I tossed it unto one of the low tables at the entrance to her offices. Patricia never got back to me going on two weeks so it is time to report my concern..
Dr. Patricia Daly is the Chief Medical Health Officer and Vice President of Public Health.. Someone who is paid to look after our public health.
With flu season upon us and all the media surrounding the rights of hospital employees to have a flu shot or not, I wanted to tell Dr. Daly that it isn't the employees she should be worried about, rather it is the public that has access to hospital faciliities as visitors, vendors, volunteers, etc. I wanted her to use her position to put masks at all hospital entrance ways and make it a requirement for everyone to wear one. She may not be able to force union employees to wear a mask but because of her unfettered power she can force everyone else to wear one.
And I also went to Emerg at VGH and told one of the doctors there who said I was being agressive and he called for security. The only thing employees of VCH can do effectively is phone security. Can't deal with something simple, phone security.
,
.
Saturday, November 17, 2012
" No conversation with you, Audrey."
I attempted to ask a simple question of one of the floor nurses at GPC who had just attended to Randy and before I could ask it, she looked at me straight in the eye and said "No conversation with you, Audrey." I quickly wrote her words down and am wondering from whom did she get this instruction. Also, I am certain she is breaking the rules/ethics of nursing no matter who told her to say this.
I am Randy's advocate and no bureaucrat can diminish that function by not speaking to me or relegating me and Randy to a separate room for thirty minute intervals so I cannot see how he is being treated
Randy is a quad, he cannot talk, he cannot research whatever treatment he is getting, he has no one else except me to make sure he isn't being given information he does not understand or being ignored. Trusting VCH to police itself is like trusting the police to police themselves. Not possible.
I am Randy's advocate and no bureaucrat can diminish that function by not speaking to me or relegating me and Randy to a separate room for thirty minute intervals so I cannot see how he is being treated
Randy is a quad, he cannot talk, he cannot research whatever treatment he is getting, he has no one else except me to make sure he isn't being given information he does not understand or being ignored. Trusting VCH to police itself is like trusting the police to police themselves. Not possible.
Tuesday, November 13, 2012
Low Lifes of VCH
I was able to overhear from VGH at noon today that Randy is going to be transported back to GPC tomorrow against Randy's and mine objections.
Anyone who reads Paul Caine's blog Civil Rights Now.Org and you won't want anyone to go to GPC.
Bob Chapman, the Risk Manaagement Director, who can find me when he wants to but in this case is behaving like he always does. He sends emails to people that do not have smart phones but these last two times he never even tried to contact me. When I would go to visit VCH to see Randy like never existed he is gone.
Randy has had three code blue infections in as many weeks this past month. He gets an infection; he is sent to VGH and then returned to GPC and after I see he has another infection, he is returned to VGH (threes times) and within days he recovers at VGH then VGH sends me back to GPC putting Randy at risk again.
When he was in emergency I was able to sleep on the floor next to him so he knew I was there.
Any suggestions as to what Randy and I should do would be appreciated.
Who wrote the legislation that gives them the right to do this.Repeatedly telling VCH that Randy does not want to be returned to GPC because it is not safe falls on deaf ears.
.
.
Anyone who reads Paul Caine's blog Civil Rights Now.Org and you won't want anyone to go to GPC.
Bob Chapman, the Risk Manaagement Director, who can find me when he wants to but in this case is behaving like he always does. He sends emails to people that do not have smart phones but these last two times he never even tried to contact me. When I would go to visit VCH to see Randy like never existed he is gone.
Randy has had three code blue infections in as many weeks this past month. He gets an infection; he is sent to VGH and then returned to GPC and after I see he has another infection, he is returned to VGH (threes times) and within days he recovers at VGH then VGH sends me back to GPC putting Randy at risk again.
When he was in emergency I was able to sleep on the floor next to him so he knew I was there.
Any suggestions as to what Randy and I should do would be appreciated.
Who wrote the legislation that gives them the right to do this.Repeatedly telling VCH that Randy does not want to be returned to GPC because it is not safe falls on deaf ears.
.
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Monday, November 12, 2012
Being respectful
I was told by Ro Ang, Manager of GPC, and Bob Chapman, Manager of Risk Management, that any emails or letters or voice mails that are not respectful (whatever that means)will not be responded to...
What tree did these apples fall off of. VCH has done everything possible to prevent me from being a true comfort advocate to Randy...and I have to be respectful (whatever that means) to these apples... and now I cannot even correspond with them. Talking to them has proved impossible as I have a voice that is agressive (whatever that means) call secuirty. I did not know that I was born with this disability until I encountered VCH.
And now I find out that I have never been banned, restricted ... I have only been subject to guidelines enforced by physical violence... There is no one who knows what they are doing at GPC or VCH.
Again, and again, and again, Randy has the right to be involved in his treatment and since I am his conduit VCH cannot stop me but they have by banning me, ignoring me, and not providing the information I need to help Randy make decisions about his care. This rings of constitution law : security of person which Randy does not have.
They even went over my head and consulted with Tanu as to whether or not Randy might be supportive of a DNR Order when Randy was in emergency at VGH. Can you imagine the terror I felt when I was told by a nurse that Randy was now DNR. Because I was able to get the DNR reversed Randy is alive and well but stilll in VGH. Yesterday we were doing bed physios: I was coaching Randy to move his fingers, hands, arms, legs and toes in 20X sets for 5 sets. He even tried to sit up. And he kept throwing/refllecting the small plush toy back at me or the floor when I threw it to him.
Randy doesn't want to go back to GPC and neither do I as the thought of it is intolerable. GPC/VCH allowed this to happen because they deferred their lack of judgment to Nurse Ratchet, the mother superior of Ward 2.
.
.
,
What tree did these apples fall off of. VCH has done everything possible to prevent me from being a true comfort advocate to Randy...and I have to be respectful (whatever that means) to these apples... and now I cannot even correspond with them. Talking to them has proved impossible as I have a voice that is agressive (whatever that means) call secuirty. I did not know that I was born with this disability until I encountered VCH.
And now I find out that I have never been banned, restricted ... I have only been subject to guidelines enforced by physical violence... There is no one who knows what they are doing at GPC or VCH.
Again, and again, and again, Randy has the right to be involved in his treatment and since I am his conduit VCH cannot stop me but they have by banning me, ignoring me, and not providing the information I need to help Randy make decisions about his care. This rings of constitution law : security of person which Randy does not have.
They even went over my head and consulted with Tanu as to whether or not Randy might be supportive of a DNR Order when Randy was in emergency at VGH. Can you imagine the terror I felt when I was told by a nurse that Randy was now DNR. Because I was able to get the DNR reversed Randy is alive and well but stilll in VGH. Yesterday we were doing bed physios: I was coaching Randy to move his fingers, hands, arms, legs and toes in 20X sets for 5 sets. He even tried to sit up. And he kept throwing/refllecting the small plush toy back at me or the floor when I threw it to him.
Randy doesn't want to go back to GPC and neither do I as the thought of it is intolerable. GPC/VCH allowed this to happen because they deferred their lack of judgment to Nurse Ratchet, the mother superior of Ward 2.
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